What is AIC doing?

We have heard from many people who are upset about what they have read in the mainstream press and on the blogosphere about clitoral surgery on young children, genital sensation tests on young children, prenatal treatment with steroids to prevent atypical genitals and “masculinized” behavior, and possible research involving children. We’ve also heard from several parents who are concerned about the public criticism. Some of them have taken their children to these doctors and found them to be caring and dedicated. Some parents feel that their personal decisions are being criticized by a public that doesn’t understand the situation. However, even the most caring doctors with the best intentions may fail to follow legal and ethical standards.

While we don’t have all the answers yet, AIC is deeply concerned about these reports. We are committed to act to protect the interests of the children we serve. This is what we are doing:

  • We have written to the OHRP asking them to investigate Dix Poppas’s surgical practices and follow-up procedures. We have written WCMC asking for the same.
  • We have invited WCMC, Mt. Sinai Medical College, and NYPH to publicly disclose what kind of information they provide for parents making decisions about dexamethasone or genital surgery. We will also invite them to meet with us and other patient advocacy groups to share concerns.
  • We are committed to following up on these investigations to see that any misconduct or institutional failures are addressed.